Noah? Who's Noah?

Wednesday, January 3. 2007

Who is Noah and why do I have a category for him? Well, Noah is our son, born on 12/10/2006 in Brisbane, Australia. Here is a photo of the little man. I know, cute as hell, but I am a bit Biased. Noah is also special because we know that he will not be with us for long. He has been diagnosed with Spinal Muscular Atrophy (SMA), type 1. Life expectancy for sufferers is fairly minimal with a median expected life span less than 12 months. As I write this, he is just shy of 3 months old.

For more infomation, you can look at the following two sites. http://www.emedicine.com/neuro/topic631.htm is quite a medically oriented article, and http://www.fsma.org/booklet.shtml is a more general overview from the Families of SMA website.

One of the reasons I've created this category (and this Blog even) is so that my wife and I can put down our thoughts on this situation and try and share our story with others. It's been quite difficult for both of us so far, and it's not going to get better from here. I will try add some more detail with future entries, but for now I just wanted to introduce Noah and include why this Category exists.

Posted by Brett Carter in Brett on Noah at 10:57 | Comments (0) | Trackbacks (0)

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