Well, it's been quite a while since I've posted here. More than a year now. Referenced in my previous post about Noah was that sufferers of SMA type 1 do not have long life expectancies. This was true for Noah. We lost him on 3rd April, 2007. He passed away peacefully at home with his family around him. He was 5 months and 22 days old. My intention now is to try and put down as many memories as possible of his time with us, and also to reflect on how we are dealing with this almost a year after it happened.
This is not an easy thing to do, but as we spend more and more time without him, the only thing we have of him is memories and photographs. Part of the healing process is to move on, and as you do, you think less and less of the loved one that you have lost. It's likened to a terrible burn that, at first, is all you can think about due to the terrible pain. As time goes on, the pain fades, and you think about the burn less and less, sometimes only when you knock the injury and then the pain flares up again. The problem is that when all you have left is memories, the less you think about the person, the more you feel them slipping away. You are loosing them all over again in a different way. We are trying to make sure we remember him without the pain, and re-live the joy we felt having him. Part of this is to express those feelings, to document them, just like the photographs we have are not of the pain and difficulty he had, but of the joy and emotions he felt. The expressions on his face, and love for us we saw in his eyes.
This is about us remembering Noah, for ourselves, and for others.
Brett.
